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Concept Mapping to Define Components for an Occupation-Based Intervention for Parkinson's Disease and Anxiety

Lookup NU author(s): Dr Chris LovegroveORCiD

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This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0).

Abstract

Background:Anxiety, a common symptom of Parkinson’s disease (PD), results in reduced life quality, reduced participation in meaningful roles and daily activities, and increased health burden. There are no evidence-based interventions to reduce the impact of anxiety in PD on participation.Objective:This study aimed to identify the key components required for the co-production of an occupation- and community-based intervention for people with PD-related anxiety.Methods:A participatory mixed-methods research study was conducted using online Group Concept Mapping methodology that included five stages: brainstorming, idea synthesis, sorting activity, rating activity, and analysis. A cluster map, pattern match, and ‘go-zone’ charts were created through multivariate statistical analysis based on participants’ responses. The stages were guided by questions generated by the research team working with stakeholders.Results:Eighty-three people participated, with 64 taking part in more than one activity. Participants included people with PD (n = 72), care partners (n = 6), and occupational therapists (n = 5). The final map contained 119 statements with eight clusters (stress value 0.252): exercise, lifestyle changes, self-help, coping, access to information, professional help, peers and groups, support from others. Significant agreement existed between the importance and feasibility rating activities (r = –0.07). ‘Go-zone’ charts highlighted the priority statements for intervention development.Conclusions:This novel participatory study highlighted priority components that provide starting points for future development of an occupation- and community-based intervention for people with PD-related anxiety.

Publication metadata

Author(s): Lovegrove CJ, Sturkenboom IHWM, Marsden J, Bannigan K

Publication type: Article

Publication status: Published

Journal: Journal of Parkinson's Disease

Year: 2024

Volume: 14

Issue: 1

Pages: 181-195

Print publication date: 23/01/2024

Online publication date: 23/01/2024

Acceptance date: 19/11/2023

Date deposited: 29/07/2024

ISSN (electronic): 1877-7171

Publisher: IOS Press

URL: https://doi.org/10.3233/JPD-230150

DOI: 10.3233/JPD-230150

Data Access Statement: The data supporting the results of this study are available from the corresponding author upon reasonable request.

PubMed id: 38160365

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