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Care needs of people with dementia in Tanzania and associated impact on carers: A cross-sectional, observational study

Lookup NU author(s): Dr Keith Gray, Professor Richard Walker

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Abstract

© The Author(s) 2024. Objectives: This study aimed to understand the care needs, care arrangements and burden of care for people with dementia in Northern Tanzania. Methods: This was a cross-sectional, observational study. People with dementia and their carers (n = 53) were recruited from an outpatient clinic, and data on carer burden and independence in activities of daily living were collected. Associations with carer burden and characteristics were explored through non-parametric tests and regression analyses. Results: Thirty-six carers were female (68%). Levels of impairment in instrumental activities of daily living were high, with a median score of 38 out of 44 on the Identification and Intervention for Dementia in Elderly Africans – Instrumental Activities of Daily Living (IDEA-IADL). Carer burden was moderate with a median Zarit Burden Interview (ZBI) score of 46 out of 88. Being a female carer was associated with higher carer burden (odds ratio 3.68, 95% CI 1.04–12.99). Discussion: Carer burden was found to be higher than in previous studies based in low-and-middle income countries. Further research is needed to explore this difference, and to identify interventions to support care needs and reduce carer burden.

Publication metadata

Author(s): Galbraith-Olive MA, Safic S, Mwaipopo L, Ernest A, Gray WK, Urasa S, Dotchin C, Fisher E, Spector A, Walker R

Publication type: Article

Publication status: Published

Journal: Dementia

Year: 2024

Volume: 23

Issue: 6

Pages: 1021-1035

Print publication date: 01/08/2024

Online publication date: 17/06/2024

Acceptance date: 02/04/2024

ISSN (print): 1471-3012

ISSN (electronic): 1741-2684

Publisher: SAGE Publications Ltd

URL: https://doi.org/10.1177/14713012241262570

DOI: 10.1177/14713012241262570

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