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Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research

Lookup NU author(s): Dr Mhairi Aitken, Professor Madeleine Murtagh

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Abstract

This consensus statement reflects the deliberations of an international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution. Our aim is to promote culture change and societal benefits through ensuring a socially responsible trajectory for innovations in this field.

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Author(s): Aitken M, Tully MP, Porteous C, Denegri S, Cunningham-Burley S, Banner N, Black C, Burgess M, Cross L, vanDelden JJM, Ford E, Fox S, Fitzpatrick NK, Gallacher K, Goddard C, Hassan L, Jamieson R, Jones KH, Kaarakainen M, Lugg-Widger F, McGrail K, McKenzie A, Moran R, Murtagh MJ, Oswald M, Paprica PA, Perrin N, Richards E, Rouse J, Webb J, Willison DJ

Publication type: Article

Publication status: Published

Journal: International Journal of Population Data Science

Year: 2019

Volume: 4

Issue: 1

Online publication date: 01/02/2019

Acceptance date: 30/08/2018

Date deposited: 27/01/2019

ISSN (electronic): 2399-4908

Publisher: Swansea University

URL: https://doi.org/10.23889/ijpds.v4i1.586

DOI: 10.23889/ijpds.v4i1.586

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