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Moving from trust to trustworthiness: Experiences of public engagement in the Scottish Health Informatics Programme

Lookup NU author(s): Dr Mhairi Aitken

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Abstract

The Scottish Health Informatics Programme (SHIP) was a Scotland-wide research programme exploring ways of collecting, managing and analysing electronic patient records for health research. As part of the SHIP public engagement work stream, a series of eight focus groups and a stakeholder workshop were conducted to explore perceptions of the role, relevance and functions of trust (or trustworthiness) in relation to research practices. The findings demonstrate that the public’s relationships of trust and/or mistrust in science and research are not straightforward. This paper aims to move beyond simple descriptions of whether publics trust researchers, or in whom members of the public place their trust, and to explore more fully the bases of public trust/mistrust in science, what trust implies and equally what it means for research/researchers to be trustworthy. This has important implications for public engagement in interdisciplinary projects.

Publication metadata

Author(s): Aitken M, Cunningham-Burley S, Pagliari C

Publication type: Article

Publication status: Published

Journal: Science and Public Policy

Year: 2016

Volume: 43

Issue: 5

Pages: 713-723

Print publication date: 01/10/2016

Online publication date: 11/05/2016

Acceptance date: 01/04/2016

Date deposited: 27/01/2019

ISSN (print): 0302-3427

ISSN (electronic): 1471-5430

Publisher: Oxford University Press

URL: https://doi.org/10.1093/scipol/scv075

DOI: 10.1093/scipol/scv075

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