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The impact on the family of the co-existing conditions of children with Autism Spectrum Disorder

Lookup NU author(s): Dr Alexandra Petrou, Dr Beena Koshy, Emerita Professor Helen McConachie, Professor Jeremy ParrORCiD

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This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0).

Abstract

We aimed to investigate whether the impact on families of children with Autism Spectrum Disorder (ASD) is associated with the number and/or type of emotional and behavioural co-existing conditions that parents/carers of children with ASD reported as occurring frequently. In addition, we examined whether there was a greater impact on families if their child was male, had lower levels of language, more severe autism symptomatology, and whether impact was associated with the number and/or type of co-existing conditions. Families were recruited from large UK research databases. 420 parents/carers of children aged 3 years 2 months to 18 years 8 months completed the revised Impact on Family (IoF) Scale and reported on the frequency/rate of their child’s co-existing conditions. Parents/carers who reported higher mean IoF scores had a child with: greater number of frequent co-existing conditions; sleep problems; children who were only able to communicate physically; and children who had more severe autism symptomatology. The development and implementation of targeted treatment and management approaches are needed to reduce the impact of co-existing conditions on family life.

Publication metadata

Author(s): Petrou AM, Soul A, Koshy B, McConachie H, Parr JR

Publication type: Article

Publication status: Published

Journal: Autism Research

Year: 2018

Volume: 11

Issue: 5

Pages: 776-787

Print publication date: 01/05/2018

Online publication date: 18/02/2018

Acceptance date: 10/01/2018

Date deposited: 12/02/2018

ISSN (print): 1939-3792

ISSN (electronic): 1939-3806

Publisher: John Wiley & Sons, Inc

URL: https://doi.org/10.1002/aur.1932

DOI: 10.1002/aur.1932

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