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The Newcastle University research output collection, currently available on ePrints, will shortly be moving to a new open repository platform, Figshare. To prepare for the data migration we have paused adding new content to ePrints, and will resume once the new repository is launched. During this time you will continue to have access to ePrints (but no new content will appear). We will share updates here when available.

Rare Disease, Big Data: the views of rare disease patients on systems for sharing data and biospecimens

Lookup NU author(s): Dr Pauline McCormack

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This is the final published version of a conference proceedings (inc. abstract) that has been published in its final definitive form by EURORDIS, 2016.

For re-use rights please refer to the publisher's terms and conditions.

Publication metadata

Author(s): McCormack P

Publication type: Conference Proceedings (inc. Abstract)

Publication status: Published

Conference Name: European Conference on Rare Diseases and Orphan Products (ECRD 2016)

Year of Conference: 2016

Online publication date: 25/05/2016

Acceptance date: 20/04/2016

Date deposited: 28/06/2016

Publisher: EURORDIS

URL: http://www.rare-diseases.eu/wp-content/uploads/2013/09/116.-Rare-Disease-Big-Data-the-Views-of-Rare-Disease-Patients-on-Systems-for-Sharing-Data-and-Biospecimens.pdf

Notes: Poster: P116 Also available at: https://figshare.com/articles/Rare_Disease_Big_Data/3393619

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